My name is Connie Deline. I am a patient with
a spinal CSF leak. I’m also a physician It’s difficult to describe
how comforting it was to see a physician who’s an expert
in treating the problem that I had. [Wouter I. Schievink, MD] My name is Wouter Schievink
I’m a neurosurgeon at Cedars-Sinai Medical Center.
There’s a very wide range in the treatment of spinal CSF leaks. It really
can involve a few hours of bed rest to surgery. [Connie Deline, MD] So what he
did is he set up imaging and that CT monogram did reveal
a leak at the neck level. So, he went on to repair
that leak. [Wouter I. Schievink, MD] An excellent option
for patients with a spinal fluid leak is what’s called an epidural blood patch and
the blood patches are really the most widely used and most well-known treatment
for these leaks. Basically what it involves is taking some
of the patients own blood and injecting it not within the spinal fluid,
but superficial to the dura in what they call the epidural space.
Almost everybody who has a spinal fluid leak will react favorably to a blood patch;
at least 95% of the patients. But not infrequently, their results are only temporary. [Connie
Deline, MD] I did very well for a few weeks but unfortunately I relapsed. So, after that,
I did require a few more procedures and eventually
a few months ago I had another surgery to repair two additional leaks
and that really improved my quality of life significantly.
I’m not symptom-free but I have, you know, hours to be upright every day which is fabulous.